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  • First blood test for ME CFS with a sensitivity of 92% and a specificity . . .
    First testing on the retrospective independent validation cohort demonstrated a strong systemic ME CFS signal with a sensitivity of 92% and a specificity of 98% Pathways analysis revealed several likely contributors to the pathology of ME CFS, including interleukins, TNFα, neuroinflammatory pathways, toll-like receptor signalling and JAK STAT
  • Chronic Fatigue Syndrome Myalgic Encephalomyelitis (ME CFS) - Reddit
    For discussion about research, treatment and recovery from ME CFS (myalgic encephalomyelitis chronic fatigue syndrome), with a focus on science and recovery
  • An NHS hospital is starving a severe ME patient and come to has now . . .
    Sent The way the NHS has dealt all with ME CFS is a disgrace I hope she has some luck
  • To those who have recovered: what healed your ME CSF?
    We understand that medical and scientific knowledge on ME CFS is limited, but we strive to maintain a space that is based on accurate information If you have any questions or concerns, please reach out to us via modmail
  • Best books about ME CFS? | Phoenix Rising ME CFS Forums
    What are some of the best books about ME CFS? I recently read Osler's Web and thought it was very well done After finishing it, I read "The Why: The Historic ME CFS Call to Arms," also by Hillary Johnson, which included both a summary of what wrong in the 80s and early 90s when the NIH, CDC
  • International ME CFS Conference 2025 - Videos
    Charité – Universitätsmedizin Berlin and the ME CFS Research Foundation organised the “International ME CFS Conference 2025“ on 12-13 May 2025 in Berlin The event was directed at medical professionals, researchers and interdisciplinary experts in the fields of medicine and biology In addition
  • ME CFS Scandal Follow up | Phoenix Rising ME CFS Forums
    "The ME CFS scandal goes much deeper than my 27-minute explainer video That was just an introduction — how for decades patients were told they had false illness beliefs and were simply afraid to exercise Major health agencies may have withdrawn these treatments, but there have been some
  • GLP-1 Agonist Boom in ME CFS, FM and Long COVID: Insights, Using it . . .
    GLP-1 Agonist Boom in ME CFS, FM and Long COVID: Insights, Using it, Trials Underway This blog covers a recent Renegade Research Roundtable, two studies reporting on the effects of GLP-1 agonists on people with mast cell activation syndrome (MCAS) and intracranial hypertension, and two major GLP-1 long-COVID trials getting underway
  • Long-term constipation incomplete evacuation in ME CFS . Experiences . . .
    I’ve had ME CFS for 8 years and have dealt with chronic constipation and a loss of consistent, full-volume evacuation compared to before However over last few years full volume evacuations have become more rare it seems Maybe every few months if that Even though incomplete bowel movements I
  • The Mild, Moderate, Severe and Very Severe Levels of ME CFS
    Those with mild ME CFS may be working full or part time, but struggle to do so Of necessity they may have stopped or curtailed all leisure and social pursuits Those with moderate ME CFS are generally not able to work, probably don't leave the house much, have to perform domestic chores slowly with breaks and rests, and may need 1 or 2 hour's nap in the middle of day Those with severe ME CFS





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